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THE FAMILY

teddy & heather

Teddy & Heather Meyer met while attending Flagler College and have both been actively involved in the St. Augustine community since then. Teddy is Head Coach for Women’s Soccer at Flagler College and until her daughter’s birth, Heather was a Special Education School Teacher for St. Johns County.

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On February 28, 2011, Palin Rose Meyer was born, shortly after her birth she was diagnosed with Prader-Willi Syndrome (PWS).
She is the only child in St. Johns County, Florida with this very rare condition. She is joined by big brother, Quinn (2 years old) and the furriest member of the family, Rosco.

Fortunately Palin began growth hormone therapy which is beginning to make a difference in her young life; however the struggles of sleep apnea, a feeding tube, hypotonia and the obvious severe financial strain of an atypical newborn have made life challenging since her birth for her family. Palin is in the “failure to thrive� stage of this syndrome, she and her family have a long road ahead of them before life becomes consistent and normal again.

It is estimated that PWS affects one in 12,000 to 15,000 births. This syndrome affects both males and females and all ethnic groups. Currently there is no cure to date, no medications or procedures are successful in staving off the relentless hunger.
However, growth hormone has been effective in increasing height, improving body mass and metabolism, and boosting strength, energy and cognitive development.

Please help us in our efforts to raise money for the Meyer family and awareness for Prader-Willi Syndrome.

To learn more about PWS visit the website of PWSA (USA) at: www.pwsausa.org

Palin Rose needs our help

With each donation, you will be touched and humbled by the possibility of helping this beautiful girl. Your donation today will go to Palin Rose, a child who needs help the most right now. Thank you in advance for your kind contribution.


PWS logo

 

For additional information about Prader Willi Syndrome and how you can help, please visit: http://www.pwsausa.org/

NEWS

Carnival For A Cause

Saturday August 20, 2011
Dinner Event
5:00 p.m. to 8:00 p.m.

For more news click here.

Slammer & Squire Golf Tournament

Sunday August 21, 2011
3:00 p.m.
golf
For more news click here.

Prader-Willi Syndrome (PWS)

Prader-Willi is a complex syndrome affecting appetite, growth, metabolism, cognitive function, and behavior. The hallmark characteristics of PWS that typically begin around age three to five include:

� An insatiable appetite that cannot learn to be controlled because of a dysfunction of the hypothalamus region in the
brain.

� Rapid weight gain on few calories because of a malfunctioning metabolic system. Therefore a closely monitored diet must be a maintained to restrict calorie intake.

� Ironically, babies typically show no interest in eating and have difficulty sucking, breathing and swallowing. This is
known as “failure to thrive� stage.

� Those with PWS need strict external controls, including access to food. Possibly to the extent of padlocking food.
This may be necessary as a life-saving intervention. Children as young as three have died of weight related
problems. These problems are life threatening and include perforation in the lining in the stomach from sudden eating
binges.

For more news click here.

Event Registration & Donations

Tickets are $25 per adult and $8 per child (4-12). We are planning on a silent auction, raffles, prizes, carnival games, food and a really fun, family night.

A portion of all ticket sales will go directly to Teddy & Heather. Thanks so much for your support!!

Learn more by clicking here.